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KEY ISSUES OF DEVELOPING PUBLIC HEALTH ACTIVISM: THE CASE OF RUSSIA
Abstract
In times of turbulence and new risks, including epidemiological ones, public healthissues gain particular importance. These issues extend beyond just medical practices andencompass the social activities of various groups of the population. This paper focuseson the unique aspects of the development of social activism in the healthcare field inRussia, specifically examining the factors that contribute to the emergence of healthrelatedactivism, the barriers that hinder its growth, and the primary forms of activistinvolvement in the healthcare domain. The primary research method was expertinterviews with managers and specialists working in the field of HIV infectionprevention and treatment, mental health, drug addiction prevention, and social andmedical assistance to people with disabilities (N=17). The research findings highlightthat public health activism in Russia is closely linked to the activities of NGOs. Often,the establishment of these organizations is a response to the efforts of individualsseeking solutions to their own health-related problems or those of closed relatives.These problems often include issues like accessing treatment, obtaining necessarymedications, accessing medical and social services, and overcoming discrimination dueto a disease. The activities of these NGOs are influenced by a continually evolving legalframework and are contingent on the availability of financial support. Consequently, theforms and objectives of health activism are also undergoing of transformation. Theconclusion highlights the role of the state as a key regulator of public health activism.
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