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SOCIAL ASSISTANCE FOR RELATIVES CARING FOR A PERSON SUFFERING FROM ALZHEIMER’S DISEASE AT HOME

Rita Virbaliene, Sandra Genalova

First published: 2023https://doi.org/10.35603/sws.iscss.2023/s07.30View metrics

Abstract

The aim of the article is to reveal what social assistance is provided to relatives caring for a person with Alzheimer's disease at home, and what opportunities are available. The study sought to uncover the problems faced by relatives caring for a person with Alzheimer’s at home. In accordance with the methodological provisions of social constructivism, the Qualitative Research Method was applied. Semi-structured interview participants were selected according to pre-defined criteria, and the study included 14 individuals caring for a relative with Alzheimer’s at home (the study participants were women). The research revealed that relatives of the patient search for information about the disease, its course, treatment and nursing process on the Internet, ask a doctor and a social worker. The relatives often care for the sick person by overestimating their possibilities and underestimating the workload, fearing that they will treat the nurse wrong, having a sense of shame, not knowing about support options, frustrated with support providers, not wanting to put a loved one in hospital, help. Excessive nursing workload, without long-term professional help, negatively and severely affects family members. In order to facilitate the work of family members, it is suggested to use day care groups, short-term care groups, and to use the professional help of nurses in nursing at home. The daily or occasional involvement of social care staff in caring for a patient at home can greatly facilitate the work of family members and at the same time protect them from fatigue. This assistance is very effective if nursing is needed without interruption for the entire 24 hours.

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Publication details

Title
SOCIAL ASSISTANCE FOR RELATIVES CARING FOR A PERSON SUFFERING FROM ALZHEIMER’S DISEASE AT HOME
Authors
Rita Virbaliene, Sandra Genalova
Proceedings
Proceedings of 10th SWS International Scientific Conference on Social Sciences - ISCSS 2023
Publisher
SGEM WORLD SCIENCE (SWS) Scholarly Society
Year
2023
Pages
439-446
SWS Citekey
Virbaliene20237111
ISSN
2682-9959
ISBN
978-3-903438-06-4
Language
en
Publication type
Proceedings Paper
Keywords
Alzheimer’s diseasesocial assistance for relativessocial services
References10

  1. Adliene, R. ir Davidoniene, O. (2012). Pagyvenusiu zmoniu psichikos sveikatos problemos, ju sprendimo budai. Bendruomenes galimybes letiniu neinfekciniu ligu valdyme (moksline praktine konferencija), (p. 42–45). Kelme.

  2. Dzidolikiene, A. (2011) Kai priciumpa viena paslaptingiausiu ligu – Alzheimerio... // Savaite, 2011, Nr. 37.

  3. Gibson, A.; Anderson, K.; Acocks, S. (2014) Exploring the Service and Support Needs of Families With Early-Onset Alzheimer’s Disease. American Journal of Alzheimers Disease and Other Dementias, 29(7) (p. 596–600).

  4. Gudzinskiene, V.; Maciuikiene, D. (2011) Senyvo amziaus asmenu, gyvenanciu socialines globos namuose, socialiniu darbuotoju teikiamos pagalbos vertinimas. Socialinis ugdymas, 15 (26) (p. 41–51).

  5. Jankunaite, D., Uzaite, V. (2011) Globejo, besirupinancio Alzheimerio liga serganciu artimuoju, streso iveikimas // Socialinis darbas. Patirtis ir metodai, 2011, Nr. 7 (1) (p. 153-174).

  6. LR socialines apsaugos ir darbo ministro 2006 m. balandzio 5 d. isakymas Nr. A1-93 „Del socialiniu paslaugu katalogo patvirtinimo“ Prieiga per interneta : https://eseimas. lrs.lt/portal/legalAct/lt/TAD/TAIS.274453 (ziureta 2020-01-25).

  7. Uzaite, V. Naujaniene, R. (2003) Seno neigalaus zmogaus globa seimoje: moters patirtis. Socialiniai neigalumo aspektai: zmogui reikia zmogaus (p. 82-94) Kaunas: Vytauto Didziojo leidykla.

  8. Zydziunaite, V., Stepanaviciene, R., Bubnys, R. (2008). Artimuju isgyvenimai priziurint Alzheimerio liga serganti asmeni: socialinio darbo kontekstas. Siauliai: Siauliu kolegijos leidybos centras.

  9. Zydziunaite, V., Sabaliauskas, S. (2017). Kokybiniai tyrimai: principai ir metodai: vadovelis socialiniu mokslu studiju programu studentams. Vilnius: Vaga.

  10. Zalimiene, L.; Lazutka, R. (2009) Socialines globos paslaugos Lietuvoje: nuo hierarchinio prie misrios globos ekonomikos modelio, Pinigu studijos: ekonomikos teorija ir praktika, t. 2 (p. 83–96).

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