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HOME CARE FOR TERMINALLY ILL
Abstract
Czech society tends to avoid topics related to death and dying. This fact has significant consequences for the care for patients in the terminal phase of a disease. One of these is low preparedness for dying, and inability to accept death as a part of life. During long a long illness or an illness with a negative prognosis, the patient thinks about end of her life, and she has a certain idea about how and where to die. If the reality differs too much from this idea, it results in a sense of discomfort. A survey by STEM/MARK conducted on behalf of the hospice care organization [1] shows that the place of dying is very important for the subjective perception of the quality of life – the majority says that the most acceptable place to spend last days of life is one's own home. 78 \% expressed the wish to die within their family, the same number of health professionals also prefer home setting as the best for patients. On the other hand, the least acceptable place to spend last days of life is the specialized hospital department for long-term care (69 \%). 88 \% declare willingness to take care for their relatives. The contrasting reality was described by another survey by [2], according to which more than two thirds of deaths (68 \%) occur in hospitals and additional 4.5 \% of deaths in social care institutions. These numbers mean that more than three quarters of deaths take place in institutions: in hospitals, long-term care departments and homes for the elderly. Less than one quarter takes place at home, and less than 1\% in hospices. This presentation provides perspectives of family members and health professionals on these topics, and some ideas on connecting health care with psychological and social support.
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