Scholarly record
THE NEEDS OF FAMILIES WITH A CHILD WITH DISABILITY
Abstract
A child with disabilities means for the family confrontation with new problems. The presence of the child changes the functioning of the family, the quality of life of all its members, and also modifies the needs of the family. The contribution is focused on the detection of needs within the family system. The method of data collection was the standard Bailey and Simeonsson Family Questionnaire (1988) which focuses on 6 areas of need - the need for family support, the need for information, the need to explain to others, the need for community services, the need for finances, the need for family functioning. The total number of respondents was 94, of who 74 were women and 20 were men. Respondents were parents of children with disabilities. The results showed a preference for the support of the family where we detected the highest score. Parents on the contrary declared the least degree of need for explanation to others. Research has also shown significant differences in individual dimensions of needs in terms of age, marital status, housing, and child diagnosis. Mapping the needs of the family and the extent of their satisfaction are considered to be an important tool in several disciplines. Knowing the increased need is better able to set up an existing support system that would saturate absent needs.
Publication Impact Profile
Publication details
References15
Benson P. R.., The impact of child symptom severity on depressed mood among parents of children with ASD: The mediating role of stress proliferation, Journal of Autism and Developmental Disorders, vol. 36/ issue 5, pp 685-695, 2006.
Taylor-Richardson K. D., Heflinger C. A., Brown T. N., Experience of strain among types of caregivers responsibilities for children with serious emotional and behavioral disorders, Journal of Emotional and Behavioral Disorders, The United State of America, vol. 14/issue 3, pp 157-168, 2006.
Bailey D., Simeonsson R., Assessing Needs of Families with Handicapped Infants, The Journal of Special Education, The United State of America, vol. 22/issue 1, pp 117- 127, 1988.
Šúryová L., Hučík J., Parents' reactions on a birth of child with intellectual disability - stress, coping, challenge, Študent na ceste k praxi II., Prešov, Slovak Republic, 2013, pp 297-308;
Jung L.A., In McWilliam R. A., Identifying Families´ Supports and Other Resources Working with Families of Young Children with Special Needs, New York, The United States of America, 2010, pp 9-26;
Repková K., Zdravotné postihnutie. Obraz z galérie nášho poznania, Bratislava, Slovak Republic, 1999, p 240;
Sloper P., Models of service support for parents of disabled children. What do we know? What do we need to know?, Child: care, health and development, vol. 25/issue 2, pp 85-99, 1999.
Bánovčinová Ľ., Bubeníková M., Empathy in nursing, Ošetřovatelství a porodní asistence, Ostrava, Czech Republic, vol. 2/issue 1, pp 165-170, 2011.
Bazalová B., Dítě s mentálním postižením a podpora jeho vývoje, Praha, Czech Republic, 2014, p 184;
Murray M. A., Needs of Parents of Mentally Retarded Children, The best of AAMR: families and mental retardation: a collection of notable AAMR journal articles across the 20th century, Washington, D.C, The United States of America, 1959, pp 49- 56;
Woulters R., Čo sú komunitné služby?, 6. medzinárodné fórum poskytovateľov sociálnych služieb pre osoby so zdravotným postihnutím, seniorov a osoby v krízovej situácii, Bratislava, Slovak Republic, 2014, pp 4-9;
Repková K., Sedláková D., Zdravotné postihnutie- vybrané fakty, čísla a výskumné zistenia v medzinárodnom a národnom kontexte, Bratislava, Slovak Republic, 2012, pp 11- 70;
Kubíčková Z., Obtížné životní situace zdravotně postižených a zejména tělesně postižených dětí a mladistvých, Kritické životní situace dětí a mladistvých s tělesným postižením, Brno, Czech Republic, 1996, pp 7-15;
Matějček Z., Rodičům mentálně postižených dětí, Jinočany, Czech Republic, 1992, p 16;
Bailey D. B. Jr., Blasco P. M., Simeonsson R. J., Needs expressed by mothers and fathers of young children with disabilities, American Journal of Mental Retardation, Washington, D. C, The United State of America, vol. 97/issue 1, pp 1-10, 1992.
View or Download full articleAccess options
SWS access login
Login as SWS Scientific CommitteeLogin as SWS Scientific PartnerLogin as SWS AuthorAuthors and approved SWS contributors will read and export their own linked papers after identity matching by SWS profile, email and SGEM GlobalID.
For librarian assistance: [email protected]
Purchase Instant Access
- Article can be downloaded after successful payment.
- Article may be used according to SWS library access terms.
- Article cannot be redistributed.



