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THE POSITIVE CONTRIBUTIONS AND SOCIAL SUPPORT OF FAMILIES WITH CHILDREN WITH DISABILITIES

Shulan Zeng, Potmesil Milon

First published: 2024https://doi.org/10.35603/sws.iscss.2024/vs07/45View metrics

Abstract

This literature review explores the current state of research on positive contributions and social support among families with children with disabilities in mainland China. Positive contributions refer to the beneficial impact on family dynamics and cohesion achieved through positive interactions with the child. International studies suggest that these contributions can enhance family happiness, while domestic research in China predominantly highlights negative aspects, such as the pressures these families encounter. The review methodology involves analyzing both qualitative and quantitative studies on family quality of life, social support, and positive contributions. Sources include academic journals, policy reports, and research articles, with a thematic synthesis conducted to identify differences in international and Chinese perspectives, alongside specific cultural influences. Social support, crucial in helping families manage stress, plays a pivotal role in fostering positive contributions. Emotional, instrumental, and informational support types have shown to mitigate family stress and encourage adaptive growth. In China, however, parents, especially of children with autism, often rely on limited informal support, which fails to meet all their needs. Cultural factors, such as collectivism, family obligation, and Confucian values, deeply influence family responses and perceptions of social support. Disabilities are frequently stigmatized, pushing families to focus on internal support networks and avoid seeking external aid. This cultural backdrop shapes the availability and nature of support, affecting how positive contributions are experienced. In conclusion, while international research increasingly acknowledges the positive contributions of children with disabilities, Chinese studies remain more concerned with challenges. Future research in China should explore how social support mechanisms could amplify positive contributions, helping improve societal attitudes toward these families and enhancing their overall well-being.

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Publication details

Title
THE POSITIVE CONTRIBUTIONS AND SOCIAL SUPPORT OF FAMILIES WITH CHILDREN WITH DISABILITIES
Authors
Shulan Zeng, Potmesil Milon
Proceedings
Proceedings of 11th SWS International Scientific Conference on Social Sciences - ISCSS 2024
Publisher
SGEM WORLD SCIENCE (SWS) Scholarly Society
Year
2024
Pages
113-120
SWS Citekey
Zeng202413113120
ISSN
2682-9959
ISBN
978-3-903438-14-9
Language
en
Publication type
Proceedings Paper
Proceedings contents
Open official contents
Keywords
References17
  1. McCubbin, H. I., & Patterson, J. M.The Family Stress Process: The Double ABCX Model of adjustment and adaptation. Marriage & Family Review, 1983,6(1-2), 7–37. DOI: 10.1300/J002v06n01_02

  2. Stainton T and Besser H.The positive impact of children with an intellectual disability on the family.Journal of Intellectual & Developmental Disability, 1998, 23( 1): 57-70 DOI: 10.1080/13668259800033581

  3. Chiu MY, Yang X, Wong FH, Li JH, Li J. Caregiving of children with intellectual disabilities in China--an examination of affiliate stigma and the cultural thesis. J Intellect Disabil Res. 2013, Dec;57(12):1117-29. DOI: 10.1111/j.1365-2788.2012.01624.x.

  4. Behr, S.k., Murphy, D.L. & Summers, J.A. (1992). User's Manual: Kansas Inventory of Parental Perceptions (KIPP). Lawrence, KS: Beach Center on Families and Disability. https://beachcenter.lsi.ku.edu/sites/default/files/KIPP%20manual.pdf

  5. Kyzar, K. B., Turnbull, A. P., Summers, J. A., & Gomez, V. A.The relationship of family support to family outcomes: A synthesis of key findings from research on severe disability. Research and Practice for Persons with Severe Disabilities, 2012, 37(4), 215-230. DOI: 10.2511/027494812800903247

  6. Bailey, D. B., Jr., Bruder, M. B., Hebbeler, K., Carta, J., Defosset, M., Greenwood, C., Kahn, L., Mallik, S., Markowitz, J., Spiker, D., Walker, D., & Barton, L. Recommended Outcomes for Families of Young Children with Disabilities. Journal of Early Intervention, 2006,28(4), 227–251. DOI: 10.1177/105381510602800401

  7. Benson PR. The impact of child symptom severity on depressed mood among parents of children with ASD: the mediating role of stress proliferation. J Autism Dev Disord. 2006, Jul;36(5):685-95. DOI: 10.1007/s10803-006-0112-3

  8. Wang P, Michaels CA, Day MS. Stresses and coping strategies of Chinese families with children with autism and other developmental disabilities. J Autism Dev Disord. 2011, Jun;41(6):783-95. DOI: 10.1007/s10803-010-1099-3

  9. Tian, B., Zeng, S., Lu, X., & Shen, R.Positive Contribution of Families Having Preschool Children with Intellectual Disabilities and Its Relationship with Social Support. Studies in Early Childhood Education, 2018, 2, 35-51. DOI: 10.13861/j.cnki.sece.2018.02.004

  10. Zhang, M. Y. (2007). A Study on the Relationship Between Family Social Support, Parenting Stress, and Empowerment in Families of Children with Developmental Delays [Doctoral dissertation, National Changhua University of Education, Taiwan].

  11. Renty JO, Roeyers H. Quality of life in high-functioning adults with autism spectrum disorder: The predictive value of disability and support characteristics. Autism. 2006, Sep;10(5):511-24. DOI: 10.1177/1362361306066604

  12. Whitaker P. Supporting families of preschool children with autism: what parents want and what helps. Autism. 2002, Dec;6(4):411-26. DOI: 10.1177/1362361302006004007

  13. An, Q., & Hu, P. A Qualitative Study on the Coping Process of Autistic Children’s Mother. Chinese Journal of Clinical Psychology,2011, 19(6), 773-755. DOI: 10.16128/j.cnki.1005-3611.2011.06.032

  14. Gokenc Gulez, S. An Overview of Chinese Concepts of Family Through Traditional Values. Journal of Oriental Studies, 2022, 0(41), 387-402. DOI: 10.26650/jos.1168036

  15. Chou, Y.-C., Lin, L.-C., Chang, A.-L., & Schalock, R. L. The quality of life of family caregivers of adults with intellectual disabilities in Taiwan. Journal of Applied Research in Intellectual Disabilities, 2007, 20(3), 200–210. DOI: 10.1111/j.1468-3148.2006.00318.x

  16. Ng CSM, Ng SSL. A qualitative study on the experience of stigma for Chinese parents of children with autism spectrum disorder. Sci Rep. 2022,Nov 15;12(1):19550. DOI: 10.1038/s41598-022-23978-0

  17. Xu, Y., Chen, F., Mirza, M., & Magana, S. Culturally adapting a parent psychoeducational intervention for Chinese immigrant families of young children withautism spectrum disorder. Journal of Policy and Practice in Intellectual Disabilities, 2022, 20(3). DOI: 10.1111/jppi.12432

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